NIH: Office of Disease Prevention

Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Pathways to Prevention. December 9-10, 2014

Final Report

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An unbiased, independent panel developed a final report of the 2014 NIH Pathways to Prevention Workshop: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, which summarizes the workshop and identifies future research priorities.

Annals of Internal Medicine

The panel's final report External Website Policy was also published in print in the Annals of Internal Medicine.

Press Release

Panel urges innovative biomedical research to improve diagnosis and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Archived Videocast

Program Book

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The program book provides attendees with a workshop overview and agenda, presentation summaries, speaker biographies, and financial disclosures from planners and presenters. The program book also lists working group and panel members, Office of Disease Prevention staff, and educational planners.

Evidence Report

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This evidence report is based on research conducted by the Pacific Northwest Evidence-based Practice Center under contract to the Agency for Healthcare Research and Quality (AHRQ). The report seeks to address the identified workshop questions:

  • What is the incidence and prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and whom does it affect?
  • Given the unique challenges to ME/CFS, how can we foster innovative research to enhance the development of treatments for patients?
  • What does research on ME/CFS tell us about the presentation and diagnosis of ME/CFS in the clinic?
  • What tools, measures, and approaches help define individuals with ME/CFS?
  • How are tools and measures used to distinguish subsets of patients with ME/CFS?

The information in this report is intended to help health care decision-makers—patients and clinicians, health system leaders, and policymakers, among others—make well-informed decisions and thereby improve the quality of health care services.

Workshop Photos

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