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Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Pathways to Prevention. December 9-10, 2014

Working Group members provided their input at a meeting held January 6-7, 2014. The information provided here was accurate at the time of that meeting.

Initial planning for the Pathways to Prevention (P2P) workshop was carried out by a Working Group composed of patient representatives and scientific content area experts from the federal government, academia, and clinical practice. Members of the Working Group were chosen by the sponsoring National Institutes of Health (NIH) Institutes, Centers, or Offices (ICs), as well as attendees of a federal organizational meeting. The Working Group was charged with drafting questions that the AHRQ Evidence-based Practice Center will consider for the systematic evidence report that serves as a foundation for the P2P workshop. The Working Group may draft additional questions for the workshop that will be addressed by invited speakers. These presentations will supplement information provided in the systematic evidence report. The Working Group also finalized the agenda, nominated speakers and panelists, selected the workshop date, and continue to be engaged in ongoing workshop planning.

Chairperson

Susan E. Maier, Ph.D.
Deputy Director
Office of Research on Women’s Health
Division of Program Coordination,
    Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health

Jody Engel, M.A., R.D.
Director of Communications
Office of Disease Prevention
Division of Program Coordination,
    Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health

Carmen R. Green, M.D.
Associate Vice President and Associate
    Dean for Health Equity and Inclusion
Professor
Health Management and Policy
Professor
Anesthesiology
Professor
Obstetrics and Gynecology
Office for Health Equity and Inclusion
University of Michigan Health System

Mady Hornig, M.D.
Director of Translational Research
Center for Infection and Immunity
Associate Professor of Epidemiology
Columbia University Mailman School of
    Public Health

Leonard A. Jason, Ph.D.
Director
Center for Community Research
DePaul University

M. Katherine Jung, Ph.D.
Program Director
Division of Metabolism and Health
    Effects
National Institute on Alcohol Abuse and
    Alcoholism
National Institutes of Health

Nancy Klimas, M.D.
Professor of Medicine
Professor and Chairperson
Department of Clinical Immunology
Scientific Director
Institute for Neuro-Immune Medicine
Nova Southeastern University

Deborah Langer, M.P.H.
Senior Communications Advisor
Office of Disease Prevention
Division of Program Coordination,
    Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health

Janet W. Maynard, M.D., M.H.S.
Acting Clinical Team Leader
Division of Pulmonary, Allergy, and
    Rheumatology Products
Food and Drug Administration

Robert Miller
Patient and Advocate

Elizabeth Neilson, M.S.N, M.P.H.
Senior Communications Advisor
Office of Disease Prevention
Division of Program Coordination,
    Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health

Eun-Chung Park, Ph.D., M.P.A.
Program Officer
National Institute of Allergy and
    Infectious Diseases
National Institutes of Health

Wilma Peterman Cross, M.S.
Deputy Director
Office of Disease Prevention
Division of Program Coordination,
    Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health

Peter C. Rowe, M.D.
Professor of Pediatrics
Director
Children’s Center Chronic Fatigue Clinic
Sunshine Natural Wellbeing Foundation
    Professor
The Johns Hopkins University School of
    Medicine

Leorey N. Saligan, Ph.D., R.N., CRNP
Chief
Symptoms Biology Unit
National Institute on Nursing Research
National Institutes of Health

Mariela C. Shirley, Ph.D.
Associate Director for Special Projects
    and Centers
Chairperson, Trans-NIH Myalgic
    Encephalomyelitis/Chronic Fatigue
    Syndrome Research Working Group
Office of Research on Women’s Health
Division of Program Coordination,
    Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health

Suzanne D. Vernon, Ph.D.
Scientific Director
Solve ME/CFS Initiative (formerly the
    CFIDS Association of America)

Paris A. Watson
Senior Advisor
Office of Disease Prevention
Division of Program Coordination,
    Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health

Jessica Wu, Ph.D.
Health Scientist
Office of Disease Prevention
Division of Program Coordination,
    Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health